NALC’s History
The National Association of Laryngectomee Clubs (NALC) was set up in 1975 by laryngectomee groups in London, Bristol, Nottingham and Birmingham. Its purpose was to promote the rehabilitation of laryngectomees after their operation, providing them with the information and support that was needed. It also sought to promote public understanding of the needs of laryngectomees, their carers and families. It became a registered charity in 1976.
For many years, NALC was an associated charity of Macmillan Cancer Support. It had clubs all around the UK, who provided the sort of non-medical help and information that can only come from experience of living as a laryngectomee. In recent years the number of clubs has fallen, as has the number of hospitals performing laryngectomies, and NALC is no longer connected to Macmillan. However our aims and purposes remain the same as they were in 1975.
Like most charities NALC was seriously affected by the Covid pandemic which restricted fundraising activities and meetings. Added to the loss of Macmillan support, NALC had to make its staff redundant and close its London office in 2022. The level of activity declined further and in 2026 the charity was closed.
HNChelp
HNChelp was formed in 1991 as the Manvers Laryngectomy Club, which supported patients at the Chesterfield Royal Hospital and was affiliated to NALC. It changed its name to HNC help in 2010 to reflect it extended the patient group it serves to include any head and neck cancer patient. Membership comes from a wide area from the Paek District to Bassetlaw, North Derbyshire and Nottinghamshire.
Our Team
Malcolm had a laryngectomy in 2002 but was able to return to his work as a school teacher. After early retirement in 2007 he joined HNChelp, his local group. He started to attend NALC meetings in London in 2009 and in 2013 he was elected NALC President. A particular interest of Malcolm’s is the involvement of patients in cancer research and he is currently involved in several studies, including the ground-breaking PETNECK2.
He has been a member of many national committees, including the head and neck audit DAHNO and NICE Guideline and Quality Standards Committees.
His first priority is working with patients and carers to ensure they receive the information and support needed to assist them through the life-changing process of a laryngectomy.
Ray had a laryngectomy in 1998. He became Chairman of the Manvers Laryngectomy Club in Chesterfield, which later became HNChelp, in 2010.
Ray has wide experience of peer support at both Chesterfield Royal Hospital and Queens Medical Centre, Nottingham. This has included supporting individual patients with pre-surgery visits and groups of patients at “Laryngectomee Days”.
He has also contributed to PPI work, including being a member of the North Trent Head and Neck Executive Group as a service user, from 2008 to 2014 and the Chesterfield Royal Hospital Patient Self-help Group and the Access Audit Working Group.
He places great value on collaborative working and has been involved with Derbyshire Voluntary Action since 2008, including their Cancer Safe Committee.
Pam joined HNChelp over 15 years ago when she was caring for her father, Brian Roberts, who was a laryngectomee. When Brian passed away, Pam continued her membership deploying her caregiver skills and experience, especially with new members. Subsequently Pam has had her own cancer journey to deal with but she continues to provide exemplary peer support.
Martin is Professor of Laryngology at University College London and a consultant ENT surgeon at UCLH. He was part of a team that carried out a larynx transplant in 2010, in California. He has been involved with NALC for over 25 years.