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What we do 


The National Association of Laryngectomee Clubs (NALC) looks after the interests of laryngectomee patients: people who have had a laryngectomy.
NALC works with almost 80 individual clubs up and down the UK and offers a range of services to laryngectomees and their families and carers. The clubs aim to provide crucial non-medical help and information that can only come from the experience of someone living with a laryngectomy. NALC also supports a wide range of healthcare professionals in the UK and worldwide and encourages education, collaboration and research.

We educate

We lead presentations to medical students, nursing students, health professionals, ambulance personnel, paramedics and related specialists, voluntary organisations, such as St John’s Ambulance Service, and the Red Cross. We also receive invitations to present to students on health-related courses in universities.

We contribute sessions to training days for nurses and emergency service workers to advise on the needs of neckbreathers.

We provide leaflets for medical staff especially nurses in hospitals, community nurses, emergency service workers and speech therapists.

We are a partner of the National Tracheostomy Safety Project


We communicate 

We provide information to help patients before and after their laryngectomy operation.

We lead information events for laryngectomees and carers  - organised several times a year in varying parts of the country, most recently in Scotland and the East Midlands.

We publish: Our CLAN quarterly newsletter keeps members up to date with laryngectomee developments and activities in our affiliated clubs.

We offer channels for discussion on our website, YouTube channel, and Twitter account

We can arrange a visitor for a patient before or after their laryngectomy.

We can provide training and assistance to laryngectomees wishing to return to swimming.

We actively support and encourage local laryngectomee clubs, in particular on any issues they have to address in their own locality.

We are approved by the Information Standard as a reliable information provider.

We provide a nationwide resource for laryngectomees who need help and advice, via our London office

 

We influence policy

We have successfully lobbied government for filters and other devices to be available on prescription

 

We influence research

We support relevant studies and clinical trials in their applications for funding

We are involved in a variety of forums including Head & Neck Pathway groups, the Macmillan Cancer Support AGM, Hospital Trust Groups focusing on Head and Neck, Head & Neck Clinical Studies groups, Head & Neck Research groups, The National Cancer Intelligence Network, The Northern Ireland Cancer Network and information days run by organisations to promote awareness of cancer treatment and care.

We support the contributions of our members who review patient leaflets and join steering committees.

 

We provide a patient voice

We are active members of groups organised by NICE, NCRI, NCIN and NHS England.

 


You can help NALC!

Donate

Your donations are vital and help NALC to continue to do its work supporting laryngectomees and those who care about them.

Please donate now

Fundraise
Could you or your club organise a coffee morning or similar event? We can advertise such events on the Website and in CLAN, to help maximise your success!

Sponsor
Could you or a friend or family member take part in a local or national sponsored activity to benefit NALC? We will help by appealing on our website and elsewhere for sponsors to support you

Please contact usinfo@laryngectomy.org.uk 

 

Please help us by donating to NALC. All contributions gratefully accepted